Monday, October 22, 2012

A 2 1/2 year old who barely talks



I wanted to talk a little more about Oliver's speech delay.  He'll be 2 1/2 this next month and his vocabulary consists of "no", "Daddy", "hey", "yay!", and occaisionally "Mom" or "Mama".  All of these words have been showing up within the last 2-3 weeks.  Until recently anything that ever sounded like a word was more of a spontaneous utterance.

When Oliver was 15 months old the doctor who performed his well-check voiced her concern that he hadn't yet developed a consistent vocabulary.  At that time we were focusing more on the fact that he would spontaneously say some things that definitely sounded like words.  We had no idea of how often and how clear his words should be at his age.  I often wondered if I simply couldn't interpret his babbling.  Perhaps he was actually saying words and I just didn't understand him.  Both Andrew and I were convinced that Oliver would talk when he was ready, and it would be only a matter of months before he began spouting words left and right.

At Oliver's 18 month check up we had a new doctor.  I very much respect and admire and love this doctor, and am thankful that we found him.  However, at this point I began to waver in my certainty that Oliver would begin talking soon.  When asked about the words he says we couldn't come up with anything consistent other than that we thought he said "please" fairly often, and a little before this appointment he'd said "thank you Daddy" loud and clear at the park.  So Oliver's doctor assured us that Oliver was just a shy talker and soon he would be talking so much we'd wish he wasn't.  I was not convinced, but I had nothing to go on other than my own instinct, which I myself doubted since everyone else seemed so sure.  And I had certainly been saying exactly what I was now hearing just a few months ago.

Oliver turned 2 in May, and still was not talking.  We were sent to a speech pathologist for evaluation, finally.  The final report showed a few delays, with a severe delay in expressive speech.  At just over 2 years old his expressive speech was at the level of a 6-9 month old baby!  I was shocked.  I knew he was delayed, but I'd had no idea it was that much!

The next step was to have his hearing checked.  About 2 months after his speech eval Oliver and I sat in a sound proofed room while his response to noise was examined.  He responded very well and we came away from that with more questions, and an answer we'd already known.  Oliver hears just fine.  So what is preventing his speech development?

We still don't have any answer other than that nothing is causing it, it just is.  I've struggled a lot with that.  It doesn't make any sense to me.  If there is nothing preventing him from learning to talk then why isn't he? I've also struggled with guilt, wondering if there was something I did or didn't do to cause this.  It's also been a source of deep sadness for me, and I've wondered if I should feel sad over it or not.

I've been able to deal with the guilt, which I think is just a part of being a parent.  If something goes wrong we wonder what we did or didn't do to cause it.  I'm dealing with acceptance right now.  I'm not convinced that there is no known cause for his speech delay.  There are other signs that point toward the possibility of something else, but we haven't addressed those things with his doctor yet, and there's every possibility that these other signs are not related to his speech or each other and are no cause for concern.  We'll see.

As for feeling sad, and I feel strongly about this, I've concluded that it's okay.  I am not disappointed that he's not "normal".  I am do not think he's stupid, or less intelligent because for some reason he's having trouble learning to talk.  I have been sad because this has felt overwhelming, and I want so badly to understand what he's trying to say to me.  I want to have conversations with him where I'm not making up responses to his babbling.  I want him to back talk to me.  I want to argue with him.  I want him to express his frustration, or anger, or hurt with words that I can understand.  I don't think anyone would understand this until they've been through it.  Of course I'll teach him not to back talk, to argue respectfully, to listen and obey authority, and the appropriate ways to express himself, but for now I'd be happy if he would scream "I don't want to!", or "Give it to me!", or "No Mommy!"  But even with the progress he has made recently, that seems a ways off.  So yes, I am saddened by our limited communication.

However, let me end on a hopeful note.  Though at the beginning I was overwhelmed and frustrated, confused and uncertain, I am becoming excited and hopeful.  It has taken me time, but I've found ways to try and help Oliver.  We're learning sign language together, and he can sign "eat", "please", "more", "drink", and "Daddy", and we continue to teach him new signs every day while encouraging the regular use of the ones he's already learned.  I've come up with creative and fun ways to encourage the discovery of sounds and words, and I continue to search for new ideas or improvements on old ideas.  I have to remind myself that no response to my teaching attempts does not mean a step back, or that the method is not working so I don't get discouraged when he'd rather just listen to me and doesn't join in the activity I've prepared.  No response means that we are still where we were yesterday.  No response to a new idea means that it might take time, days, or weeks.  I have to be patient and take the victories as they come, while not being discouraged on the days when they don't.  It's hard work, but it's worth it.  He is worth it.

(I want to note that he is not currently in speech therapy.  It has been advised and we have two options that we are pursuing, but it is taking time and is not as easy as I think it should be.  In the mean time I am working hard to work with him to the best of my ability.) 

Monday, October 15, 2012

Getting caught up...

It's been quite a while since my last post.  There's been a lot going on, and yet not much at all.  I know, such a contrary statement.

Since my last blog post my best friend got married and I was so blessed to have been a part of that beautiful day!  Wynter and I flew up to Washington for the occasion and were able to spend time with friends and family that I love and miss terribly.  While there I hatched a plan for our whole family to visit Washington next fall, and hopefully we can make it work.
Ferry docks, at Vashon Island I believe.
Oliver was evaluated and diagnosed with speech delay by a speech pathologist at Tucson Medical Center.  We had his hearing tested, and he passed easily, so we're still searching for answers.  I'm not convinced there is no reason behind his speech delay yet, though it is possible.  We're trying to get him some form of speech therapy either through the hospital or through the Blake Foundation here in Tucson, but the process is going rather slowly.  Partly due to the fact I hate making phone calls of any sort to set appointments or whatnot.

We've been teaching Oliver sign language for communication, and he seems to take to that so easily.  He recently started saying "no" but he doesn't always use it.  In fact it's been a few days.  I'm getting him back in to see the doctor to discuss other areas of possible delay just to be sure there isn't an underlying issue.

The speech delay we're dealing with has been a surprise for us.  Never did I expect to be dealing with something like this.  It makes me sad because I can't communicate the way I had expected to and the way I want to with my little boy.  It has, however, caused me to be more involved, more creative, and more focused on finding other ways to communicate, teach, and play with Oliver.

Wynter is almost 10 months old, and has come so far!  She's crawling, standing with the help of furniture and cruising very well.  She's recently begun to stand on her own, without help, and I'm sure walking is not far off.  She's very vocal, and very loud about it too.  She shakes her head "no", although it's more for fun than to say "no".  Sometimes she nods her head for fun also.  She's very curious about everything Oliver does.  When he's coloring she wants to join in, and perhaps for that reason has already figured out how to scribble on paper.  She loves her brother so much, and it shows in how she wants to be near him, and play with him, and copy everything he does.  They play with cars together, and chase each other around; she steals his sippy cups, and tries to eat his food if it's within her reach; I think she's learned things by watching him that Oliver didn't learn/do until later on.

Parenting is such an experience!  Oliver and Wynter are as different from each other as they are alike.  They need different things sometimes, and the same things other times.  There is no one day exactly like the last or the next.  There are also days, like today, when I see it as an adventure, but there are many days when it's a trial and I feel frustrated and emotionally spent.

The next several weeks hold many more things for our family.  We're taking both children trick 'r treating for the first time ever!  Oliver will be dressed as Thor, and Wynter as Wonder Woman.  Then in November we have Thanksgiving which is one of my favorite holidays, and at the end of November our current lease is up and we're planning on moving someplace bigger and more family friendly.  December brings my favorite season of all, Christmas!  It will be filled with baking, and singing, and joy.  We'll go to Winterhaven (a neighborhood of Christmas lights), and Summerhaven (a little town atop Mt. Lemmon) where we'll introduce Oliver and Wynter to snow for the first time.

I'm hoping to blog again more regularly as it is something I truly enjoy doing, but if not then know I'm still around, struggling and enjoying the adventure of parenthood.